Jamie Won and Alsharief Abdoalrhman
My friend Bill was born with hemophilia. His fathers side of the family has a history with the disease, and it was no surprise that Bill has inherited the disease. I don’t see him very often, he usually has to go to replacement therapy. He suffers from chronic muscle atrophy and contractions He loves to play sports but is unable to, fearing the fact that if he were to get hurt and start bleeding, it wouldn’t stop for several days at a time. There were also times when he starts bleeding internally for no reason whatsoever, so it’s a good thing he leaves close to the hospital just in case of such an emergency. There’s also the slightest chance that he might develop intracranial hemorrhage, which could cause blood to pressure up into his skull. This has already happened once before but thankfully he just lost consciousness and woke up later. We were all scared of what would happen to him, but he just kept on smiling and told us “Don’t worry about me, I’ll be fine.”
The disease, as told by the doctor who diagnosed Bill as a child, is caused by the 23rd chromosome. The disease lowers the blood plasma clotting factor for normal blood clots which means that when Bill starts bleeding, he doesn’t start bleeding harder, he starts bleeding longer for more periods of time.
Because of his replacement therapy, Bill was less able to hang out with his friends, and eventually they drifted apart from him, leaving me as his only friend. It makes me upset that they would treat him like that and there is nothing I can do to help. Bill has severe hemophilia and spends a lot of time in replacement centers in order to prevent bleeding episodes before they happen. Other than that, we still do the things that usually do. We hang out, play video games, and talk about school and life in general. One time, I visited Bill at one of his replacement center sessions. His birthday was coming up, so I bought him a pet parrot since that was his favorite animal. He was so happy when I got it for him, but when I passed the cage to him, he dropped it and the bird got out. It flew around the center, yelling fragments of speech it learned from the nearby people who were shouting. While everyone was panicking, Bill and I were just laughing in the corner. Even through the struggles of Bill and his case of severe hemophilia, there are moments I realize that Bill is still Bill, my best friend and partner in crime.